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Showing posts from March, 2023

Invisible Illness Stigma: Understanding the Challenges Faced by Those with M.E

Myalgic Encephalomyelitis (M.E), also known as Chronic Fatigue Syndrome (CFS), affects millions of people worldwide, yet many continue to face disbelief, invalidation, and dismissive attitudes from others due to the invisible nature of their illness. One such example is Sarah, who was diagnosed with M.E several years ago. Despite struggling with debilitating fatigue, pain, and cognitive impairment, her family and friends often question the legitimacy of her illness, assuming that she is just being lazy or exaggerating her symptoms. This disbelief has caused Sarah to feel isolated and unsupported, adding to the mental health challenges already posed by her condition. Another example is John, who has been struggling to obtain disability benefits due to the lack of understanding surrounding M.E. Although he is unable to work due to his condition, his applications for benefits have been denied multiple times due to the lack of visibility of his symptoms. John's story is not unique, as ...

Living with Depression and M.E.: My Personal Experience

As someone living with M.E. and depression, my life can feel like a constant uphill battle. There are days when I can't get out of bed, and the smallest tasks feel impossible. The fatigue and muscle pain that comes with M.E. is difficult enough, but when depression sets in, it's like a weight that's crushing me from the inside out. I remember the first time I experienced a major depressive episode. I was in my early 30s and had just been diagnosed with M.E. I felt like my life was over before it had even begun. I couldn't work, socialise, or even take care of myself properly. It was a dark time, and I felt like I was drowning in hopelessness. Over the years, I've learned to manage my symptoms and cope with my mental health challenges. But that doesn't mean it's easy. Some days, I still feel like I'm barely treading water. One thing that's helped me is finding a supportive community. I've joined online and in-person support groups where I can conn...

Help, I Can't Get Out of Bed: My Journey with M.E.

I wake up in the morning and all I want to do is go back to sleep. The thought of getting out of bed and facing the day seems impossible. I lay there, willing myself to move, but my body just won't cooperate. This is my reality with M.E. – a chronic illness that has completely changed my life. For those who don't know, M.E. stands for Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome. It's a condition that affects my nervous system, leaving me with extreme fatigue, muscle pain, and brain fog. Every day feels like a battle, a struggle to get out of bed and face the world. I used to be an active person, always on the go and living life to the fullest. But now, even the simplest tasks can feel like a marathon. Taking a shower or making a meal can leave me completely exhausted. It's hard for people to understand just how debilitating M.E. can be. The worst part of it all is the isolation. I feel like I'm living in a different world than everyone else. Wh...